Realization

[movingon]

Oh good John! Want you to get home where you'll be more comfortable...and get those proper treatments going ! 

[KayC]

John, everywhere I hear medical are dropping the ball.  I hate they put you in this position.  I hope by now you are home and they will figure out the next plan of treatment.

For me it's my taxes, they've had them a month, still haven't done them, much more snow coming and lasting. This is what I was afraid of, but I couldn't get them to get on the ball.  They don't consider where I live.

[John9]

Hello all,

I was released and Wednesday I had my Radiation. I thought I was doing okay, but I had nausea again and ended up in bed, but I managed to nap for a few hours and woke feeling a little better and managed to at least have a feeding, albeit  a small one. Today was a little better, and our Son met the primary Oncologist for the first time, so he is aware of some of the treatments coming. I'm just struggling to make it through each day. Take care, John

[Gail 8588]

John9, 

Thanks for posting.  I imagine it takes a lot of effort on your part. But we appreciate it.

I hope that the treatments will  more tolerable as you move forward. Glad you could take a small feeding.

Prayers for strength and healing.

Gail 

[movingon]

That's better news John, hope tomorrow you will feel even better, sending you good thoughts.

[foreverhis]

@John9  I echo Gail's sentiment.  It can't be easy keeping us up to date.  I appreciate it.  You know we're all pulling for you, sending you prayers and healing thoughts.  You are in our hearts as you go through this very difficult journey.  I'm glad your son is there with you.  Take care of yourself as much as you can; let your son carry some of the burden.  ((HUGS))

[KayC]

11 hours ago, John9 said:

I'm just struggling to make it through each day.

And that's how it'll be for a while...get through this one day at a time and eventually you'll see that glimmer of light.  I thank God for your son being there!

[John9]

Hello all,

I had a Radiation treatment this morning, I thought I was doing okay. I came back to the house and started my medications and did a feeding. Then about an hour later I felt nauseous and had to go to the bathroom and ended up going to bed for 4 hours. I did get up and tried my medications again and then drank some V8 juice and had some soup, I am about to try the other part of the feeding. Hopefully I will make it through and will be able to stay out of the Hospital this weekend. Take care, John

[KayC]

John, I'm sorry it's making you sick.  Praying you can keep some food down!  And not feel so sick.

 

[John9]

10 hours ago, KayC said:

John, I'm sorry it's making you sick.  Praying you can keep some food down!  And not feel so sick.

 

KayC,

Thank you. I did manage to keep everything in yesterday, but I was trying to prepare for a Nurse visit today and vacuumed the carpet AND that made me nauseous. I did manage to do my feeding and when the Nurse came she said that the vacuuming may have been too much for me at this time. I don't do much right now but I didn't think that was too strenuous, but it must have been because after I relaxed it has been okay so far. I did drink a V8 and I just ate some cream of wheat with some peanut butter mixed in for calories and it is okay so far. Hopefully it will be okay for my later feeding. I guess I need to figure out what is my triggers for this, just like I had to figure out my triggers for the grieving. Take care, John

[movingon]

Rest John, you need to conserve your energy. Everyone here is thinking of you.

[KayC]

Peanut butter is good! Calories, protein, lots of nutrients. Has Glutathione... 

https://www.healthline.com/health/glutathione-benefits?fbclid=IwAR02srlRiIyZ4Kq5IcxumWdjg3dg8l194iC2Mqh8TIbIe3eeVBVyflC_RxI
I recently found this for my diabetic group:
https://ravusinfo.blogspot.com/2021/10/can-i-eat-peanuts-for-diabetes.html?m=1&fbclid=IwAR0If7I3rAEVCT39dRWW8bwNoBepX5tsqxC_wA2CLewFzF4v878wqFrOhlQ

Best to leave the vacuuming for now, your job right now is to get through this...get well.  We are all praying for you John!

[KayC]

Thinking of you, John, been a few days, I hope you're doing okay!

[John9]

Hello all,

I'm still here, but it isn't easy. I spoke to my Radiation Doctors Nurse and told her that I think part of my nausea is motion sickness. My loving wife and I used to take our Son to the amusement parks, but I could only ride certain rides because I would get sick. I realized that when I was in the Hospital the last time that the Doctors listened to me when I said I felt fine when I didn't move and they prescribed a motion sickness patch that lasts for 3 days. Sadly they sent my out of the Hospital without a prescription. Through much research I figured out I am one of the "lucky" people that radiation and Chemo can trigger motion sickness. The Doctor prescribed the patch and it does seem to help me, Since Monday I was only nauseous 1 time. I still have my other issues with the feedings and diarrhea but one thing at a time. I am trying to eat what I can, but an all liquid diet is hard to process since I am always feeling full. I am losing weight each week and I am trying to follow the Doctors orders. Hopefully if I can tolerate a little more each day I will at least stop the weight loss. I thank everyone for the thoughts and prayers. The treatments just wear me down and I am so tired all of the time, and that makes it hard to eat as well because I spent 2 days in bed most of the day. Take care, John

[movingon]

John, I'm so sorry for what you are going through, no, none of it easy. Just rest John, rest and eat what your body can tolerate. And think of us here all praying for you and sending you healing thoughts. 

[Sparky1]

Hey John, good to see your post. I hope and pray that these treatments help you, main thing is to get your nutrients to keep your strength up. We're here thinking of you, God bless.

[KayC]

13 hours ago, John9 said:

I am one of the "lucky" people that radiation and Chemo can trigger motion sickness. The Doctor prescribed the patch and it does seem to help me

I am so glad you got some help for it! I hadn't heard of that so I'm glad you figured it out!  Take care of yourself, please no vacuuming or anything strenuous, you need someone to take care of YOU for a while!  However long it takes, we want you back healthy, living, you contribute much to the world but right now it all needs directed towards YOU getting well. 

 

[Gail 8588]

John, 

Thanks for the update! So glad you thought of the motion sickness issue.  Hopefully that patch will help enough that you will stop losing weight, maybe even gain some weight. 

I will share this idea with my BIL because radiation is making him very nauseous all the time too.  Maybe this will help him feel a little better as well. 

Sending you lots of thoughts of strength and healing. 

Gail

[movingon]

John...are you alright? Are you at home? Please let us know how you are doing, it's been a few days...

[Gail 8588]

Thinking of you John and wishing you well. 

Gail

[John9]

Hello all,

I am in the hospital and have been since Tuesday, I was experiencing issues with my vision and hearing. They did an MRI but nothing showed any indication of a problem. The Oncologist said that it could be from the chemotherapy drugs, I am in the hospital where my treatments are and I had 2 radiation treatments while here. The Doctors tried to get my feeding tube scheduled but after a few hours I couldn’t handle the pain so they had to stop, it felt like a hot knife in my stomach. I keep having the nausea and they keep tweaking the drugs and today I haven’t had any issues. Whether it lasts is another matter. Right now I’m receiving nutrients from an IV but I don’t know what the plan is because I can’t do that at home. Take care John 

[KayC]

Praying they figure out what to do, John, thank you for letting us know what is going on!  

[Gail 8588]

Hi John, 

Just thinking about you and wishing you well.  I hope the doctors have tweaked your treatments to the point where you can tolerate them well. I hope one way or another they are getting nutrition into you to give you strength to help you heal. 

We know you will post when you can. No pressure, just know we are all pulling for you. 

Gail

[KayC]

Amen.

[foreverhis]

Indeed, Gail. I understand that John is struggling and can’t be with us right now. I keep him in my thoughts and heart. 

[KayC]

John, checking in with you, wondering how you're doing...if/when you're up to it, let us know.  We're all thinking of you.

[John9]

Hello all,

 I’m still in the Hospital with uncontrollable nausea. I seem fine one day and then it is terrible the next day. I’m down to the last 5 radiation treatments, if it works out that portion will end next Friday. But I’ve only had 2 chemotherapy sessions. I am just. So tired of this and want it to end. I can’t sleep very well because of the IV, I am up every 2 hours to pee, and I have to unplug the pumps to take them with me, so I’m mostly awake when I get up to go. Then I have to plug them back in and try to get comfortable before the next time. I am sorry to say I am so tired of this existence and just want to go to sleep and never wake up again except in my loving wife’s embrace. Take care John 

[Gail 8588]

John, 

Thanks for the post, wish it was better news, as I am sure you do. 

Perhaps when the radiation treatments are complete you will feel better. 

It is completely understandable how you feel.  I am pretty sure most of us here would feel the same if we were in your shoes. 

Hoping you have more and more days without nausea this week. 

We are all sending you best wishes for comfort and healing.

Gail

[movingon]

I am so sorry you are suffering through this John, please know you are in our hearts and prayers 

[KayC]

John, my heart goes out to you, none of this is easy or fair, you sure don't deserve this...I guess life doesn't dole out what we deserve.  I just wish this was all behind you.  I hope you know we are all rooting for you.

Last night I met the husband of a gal I used to work with, she was 56, died of cancer three years ago, third time...I wonder why I am here at 70 while she is gone, she had a husband to live for.  Seems so unfair.

[Sparky1]

Thanks for the update John. I pray that you get better with these treatments, we are all here thinking of you and praying that you get well.

[John9]

Hello all,

Today was my last radiation treatment and apparently they’re not going to do any more chemotherapy because they are su to be done together and I was unable to have them. Not sure what the next step is but I was told that the effects may take weeks to go away or lessen . They want another MRI of my head but I have been waiting since 6am for them to get me. Just more waiting, just as the last two years have been. Just want this to end soon. Take care John 

[Sparky1]

Hi John, thanks for the update. Just hoping and praying that you get better. Take care.

 

[Gail 8588]

John, 

Thanks for the post!   

I hope this respite from active treatment will allow you to feel better.  It has been a long hard ordeal. Praying that this will put you in remission and restore some small pleasures like being able to eat and enjoy a favorite food.

Sending you thoughts of strength and healing. 

Gail

[Jemiga70]

John, it's good to hear from you.  (I get freaked out when people don't post for a while, but given your circumstances it's totally understandable.)  Hope you can begin to feel better soon.

[KayC]

John, so good to hear from you and I hope and pray that very soon the effects will begin to lessen for you.  I hope they figure out the next step soon so this can all be behind you!     Thinking of you, my friend!

[John9]

Hello all,

 I’m still in the hospital and I’m not doing well, I keep throwing up and that is irritating the tumor and I can’t eat and the only thing keeping me existing is also potentially killing me. I don’t know why GOD won’t let me go and be with my loving wife. This hurts so much and makes no sense to me at all. Take care John 

[KayC]

John, I am so sorry.  Of course it doesn't make sense, none of this does.  Continuing to pray...

[movingon]

John, you are right, Kay is right, why must you suffer? It doesn't make sense, it breaks the heart. I wish we were all there with you in the hospital, you would be surrounded with love John. You have suffered so much, we will all pray for you John and know we will not stop praying. 

[Gail 8588]

John, 

I am so sad to hear how you are suffering.  It makes no sense. I also pray for you to find some relief.

I wish we could do more to help you.  I'll yell at God on your behalf.

Gail

[Sparky1]

John, yes it's tough reading about you not getting better. I pray that things do change and hopefully you can recover. All of us are praying for you, brother. 

[foreverhis]

John, I too am so sorry to hear how you are suffering.  We all know it's not fair.  Please know you are in our hearts, thoughts, and prayers.

[John9]

Hello all my friends,

I am still in the hospital and there may be a glimmer of hope on the horizon. The Doctors replaced and extended the feeding tube and at first it was no different. But they restarted the feeding tube today and other than diarrhea it is slowly working. I will take that over throwing up all of time. The boredom is one of the worse things about being here in the hospital. I miss my loving wife so much and really need here. KayC, how is your Sister doing with the issues she had due to Shingle vaccine. There is so much everyone else is going through that I haven’t been able to comment about. I appreciate all of the kind words and prayers. There is no need to yell at GOD though, because only he knows his plans, I just hope that whatever he has planned for me ends soon and I’m allowed to be with my loving wife again. Take care, John 

[movingon]

You are a wonderful man John, for everything you are enduring, you still manage to be here with us. We are all with you through all of this...our thoughts and prayers ..

[Gail 8588]

John, 

Thanks for the update.  We are always so grateful to hear from you.  I am so glad there is a glimmer of hope.

I won't yell at God, but I'll continue to pray that he gives you some relief from all your suffering. 

I hope this improved feeding tube helps. 

Wishing you better days ahead. 

Gail

[KayC]

12 hours ago, John9 said:

Hello all my friends,

I am still in the hospital and there may be a glimmer of hope on the horizon. The Doctors replaced and extended the feeding tube and at first it was no different. But they restarted the feeding tube today and other than diarrhea it is slowly working. I will take that over throwing up all of time. The boredom is one of the worse things about being here in the hospital. I miss my loving wife so much and really need here. KayC, how is your Sister doing with the issues she had due to Shingle vaccine. There is so much everyone else is going through that I haven’t been able to comment about. I appreciate all of the kind words and prayers. There is no need to yell at GOD though, because only he knows his plans, I just hope that whatever he has planned for me ends soon and I’m allowed to be with my loving wife again. Take care, John 

I am so glad the feeding tube is working, wish you didn't have the diarrhea but you're right, it beats vomiting.  
My sister is touring Scotland so obviously doing better, she said she think she'll have issues with weakness for many years to come though.  Her husband is such a trooper, so glad she has him.  (Just wish the rest of us had ours too, but that goes without saying.)  I wish you had your wife by your side as you go through this, that would relieve much of the boredom I'm sure!

[Sparky1]

Hi John, I am so glad to read some good news. If you can manage to keep the nutrition in you, it will only strengthen you and hopefully you will have more energy to recuperate. I pray you get better, take care 

[John9]

Hello my friends,

 I’m so far tolerating a slower feeding, but found out today my insurance company rejected the claim for my formula because they claim I don’t have the coverage for it. The first billing is over $500 and I am going to have an issue when they let me out of the hospital. I’m hoping that I will be able to eat , at least my liquid diet again. I haven’t been informed about the next phase of the treatment but today is 2 weeks since the last radiation treatment. I have to get out of here before I go crazy though. I don’t know what the follow up appointments will be like and how many new drugs they will put me on. I am on a lot of drugs here for nausea control, 4 different ones and they are injecting them into my port which I am unable to do when I’m released. Right now my incision is irritated and painful, but expected I guess according to the nurse today. She said just to make sure they keep an eye on the area. The first surgery wasn’t like this after the first days because of the fentanyl patch, but this really still hurts even with the patch. Take care John 

[KayC]

Oh John!  Not what you need!  Contact your cancer center and see if they have any helps available.  They were helpful to Iris, I pray they will with you.  This is all because of the cancer so related!  Praying my friend...

[Gail 8588]

John,

Definitely appeal the denial and ask your doctors to write to them regarding your need for this formula. I can't believe they can deny you nutrition.

So sorry that everything is a battle. 

Hoping your incision heals soon so you are not in pain from that!

Prayers for better days. 

Gail