Members brandonsrockqueen Posted December 6, 2007 Members Report Share Posted December 6, 2007 HiMy name is lisa and im new to the board. I joined to speak to other people who are dealing with terminal ill or have a family member that is ill.I hope ive posted in the right placeMy sister is terminally and was diagnosed 5 years ago. She is now 25 and will be 26 next year. However she has been in and out of hospital since she was 3 months old. when she was born she was diagnosed with a very rare illness which caused her to take seizures all the time and she was eventually given surgery to remove the left side of her brain in order to stop them. This meant she would be in wheelchair the rest of her life. Since then she has been in hospital alot, she developed problems with her throat and had to be put on a feeding tube, and operation had to be done on her hip, she also developed kidney problems in the last year. Just after her first surgery with her brain the doctors said her life expectancy would possibly only be till she was 13 but shes amazed all the doctors over the years with her strength and gotten better each time but 5 years ago she started having very bad seizures which then led onto other health problems. It is now at the stage where she sleeps whenever she is in pain as it is now her body's way of dealing with it.Over the last year she has been in and out of hospital more frequently, almost every few weeks and this year for the first time she was put on life support when she took 3 seizures in one day which affected her breathing badly. I found over the years our family unit(me,mum,dad,gran and grandpa) all adjusted to the hosptial visits and times where she would take seizures and getting her to hospital and being strong for her but i found myself recently feeling more worried especially after seeing her on the life support and i just cant help feeling that all the more frequent hospital visits are making me wonder what if she doesnt come home from the hospital next time and i just feel so horrible for thinking it. I love my sister so much and if i could give her an organ or donate blood if it made any difference i would and i just cant bear the thought of losing her. I apologise if my thoughts are all over the place, i was just looking to speak about what is happening right now and just to speak to people who are going through the similar experiences. Link to comment Share on other sites More sharing options...
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