Members hbgauthier Posted July 31, 2012 Members Report Share Posted July 31, 2012 My 26 year old daughter is going to die. She was diagnosed with Leukemia at the age of 4. She relapsed at 8 and had a bone marrow transplant. Then at 22 she was diagnosed with bone cancer. The treatment meant she lost her left leg. half her pelvis and part of her spine. She went from being an active college student to a paraplegic plagued with pressure ulcers. However, she worked hard to graduate from college. After she recovered from MONTHS of pressure ulcers, she started to really live a full life again. Cycling with a hand cycle, trying adaptive downhill skiing- she was so happy to be alive and "healthy". Unfortunately, the cancer has spread to her lungs and now her lymph nodes. Her prognosis is very grim- probably she will not be here in one year. I have been with her through so many of the challenges, changing, cleaning and packing numerous wounds,helping her to learn how to do so many things that being a paraplegic has required her to learn- catheterization, colostomy care, wheelchair use... I have been blessed to have had the freedom to be with her through so much. Now what do I do?? I watched my own mother die from cancer that had spread to her lungs.It was so sad watching my mom suffer and struggle to breathe. How,oh how can I help my daughter through this? Idon't feel as if I am strong enough. Hasn't my beloved daughter suffered enough in her short life??? I don't know how to help her. If anyone has gone through this before- please tell me how you were able to get through watching your adult child suffer AND MOST IMPORTANTLY, how can I help my daughter not be terrified. We have not had any kind of discussion about the future events. We are religious and do believe in an afterlife. My daughter often says lings like "next year, when I apply for graduate school" . I have been with her at each doctor's appointment, and we have heard the same things, I think she either doesn't choose to listen and really believe it all, or she is just trying to protect me and her dad and younger siblings. I don't want to rub her nose in her situation if she is choosing to ignore it. I figure that as time goes on, she will not have that luxury. She already tires very easily and has a horrible cough, so she must feel what is happening. Is this the right thing to do?? Please help. Link to comment Share on other sites More sharing options...
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