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Never felt so alone


KayC

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Kay. I am so sorry that you are struggling with all this on your own. Doctors appointments are not pleasant at the best of times and without our special support person they are hell. I wish I was near to you and could help.

Is there a vet that you know who might take care of your dog for a little while? With all the fire risks I would think any dog lover would try to help. I know it's hard to ask for help but sometimes you can't wait for someone to offer.

I hope you find some help both for yourself and Kodie.

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Dear KayC

I am so sorry that you're going through this. I'm the best circumstances I feel so utterly alone going to the doctor's appointments without my sweet husband who was always there for my support. I will pray for peace for you and comfort for you and your dog.

 

Lost7 

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Oh Kay, this is so much, too much really.  Is there any way you can take Kodie with you to the doctor's office?  Maybe a vet nearby who could watch him while you're at your appointment?  Or explain the situation and ask for him to be with you at your appointment.  Being West Coasters, we all know all too well what can happen with wildfires and you're already within an evacuation warning zone.

I'll be praying for you both today, that's for sure.((HUGS))

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I will be praying for you KayC.  I haven’t posted (under steveb) in awhile.  I had to make a new account.  You have given me great comfort with your caring posts.  I hope the doctor can quickly resolve your condition.  
 

Hugs in bunches, steve

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Kay, I'm so sorry about this situation for you. Some excellent suggestions here about possible options; I hope one of them works! Hopefully there's a vet near the Dr - or maybe a kennel? - or the Dr's office themselves might be willing to somehow accommodate. Thinking of you and hoping this works out!! 

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@KayC  Thinking of you and Kodie.  May all go well for you tomorrow Kay.

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11 hours ago, Trish V. said:

When I do not get a sense or "sign", I think he is doing well and I don't want to bother him or his soul

Oh Hon, you are not bothering him!  They are in that next place, where there is no sorrow or pain, but our love hasn't died, it still exists...for us it's wrapped up in daily life, but for them, there is no time constraints, their lives now are good so that in itself is a blessing.

14 hours ago, foreverhis said:

you're already within an evacuation warning zone.

No, I'm not at this point...if it gets to that point, it's already too late.  The evacuation zone is Waldo and Box Canyon, we're still a few miles away...but I also know how fast fire can travel if the circumstances are right.  This was at 14,000 acres and suddenly grew to 18,000!  It's the wind shift that is unnerving, it's towards us today/tomorrow.  My friend will come get Kodie, she has an appt at 11 but will at noon...he'll be here until then...she lives in the neighborhood.

There are no vets here, just got notice the one that'd been here for years closed...the ones that missed Arlie's diagnosis.  I use an out of town vet for Kodie.  I don't know where you guys find your vets but the ones I know aren't like that.  Everyone is by the book, appts, professional, and charging.  Had I thought of it I could have called my friends on the other side of Eugene, but too late now, having to leave here at 8:15.  Will have to trust everything will be okay fire wise another day.

As for the throat/tongue thing, I am scared, it'll be two years at Christmas I've had this, doctors would not look in my throat "because of Covid!"  I feel let down.  My current one finally looked (last OV) but had no clue.  It looks like thrush with inflamed tongue glands, but was treated for that, didn't help.  Tested for allergies (can mimic thrush), negative.  At least for what they tested.  Could be Candida, that'd be best case scenario but cancer...I'm on my own, no support, I don't want to think about it.  I have a friend with the same issue, 14 montths longer than mine, she went to every ear/nose/throat specialist in the valley...no help.  Told her to suck on a sugar lozenge, she's T1 Diabetic! 

***This is the place I know and my resources are here...but they are also subject to fire if this breaks loose and a kennel here would not be any safer than home...

Thank you all for your prayers.  I actually forgot I posted this, I realize I was really crying out for someone to care!  Sometimes this life is so hard to navigate without our partner and best friend by our side.  :(

11 hours ago, Trish V. said:

I lost my dearest. most precious gift , my soulmate in February.

I welcome you here, I'm sorry this seems all about me, my heart goes out to you in your loss!  You've already hit the six month mark, which is one of the hardest times on our journey, so I want to leave you with some helps.

Six Month Mark
Six Month Mark

 

Grief Process

This is not a one-size-fits-all, what strikes us one day will be different a few months/years from now, so please save/print this for reference!

I want to share an article I wrote of the things I've found helpful over the years, in the hopes something will be of help to you either now or on down the road.

TIPS TO MAKE YOUR WAY THROUGH GRIEF

There's no way to sum up how to go on in a simple easy answer, but I encourage you to read the other threads here, little by little you will learn how to make your way through this.  I do want to give you some pointers though, of some things I've learned on my journey.

  • Take one day at a time.  The Bible says each day has enough trouble of its own, I've found that to be true, so don't bite off more than you can chew.  It can be challenging enough just to tackle today.  I tell myself, I only have to get through today.  Then I get up tomorrow and do it all over again.  To think about the "rest of my life" invites anxiety.
  • Don't be afraid, grief may not end but it evolves.  The intensity lessens eventually.
  • Visit your doctor.  Tell them about your loss, any troubles sleeping, suicidal thoughts, anxiety attacks.  They need to know these things in order to help you through it...this is all part of grief.
  • Suicidal thoughts are common in early grief.  If they're reoccurring, call a suicide hotline.  I felt that way early on, but then realized it wasn't that I wanted to die so much as I didn't want to go through what I'd have to face if I lived.  Back to taking a day at a time.  Suicide Hotline - Call 1-800-273-8255 or www.crisis textline.org or US and Canada: text 741741 UK: text 85258 | Ireland: text 50808
  • Give yourself permission to smile.  It is not our grief that binds us to them, but our love, and that continues still.
  • Try not to isolate too much.  
  • There's a balance to reach between taking time to process our grief, and avoiding it...it's good to find that balance for yourself.  We can't keep so busy as to avoid our grief, it has a way of haunting us, finding us, and demanding we pay attention to it!  Some people set aside time every day to grieve.  I didn't have to, it searched and found me!
  • Self-care is extremely important, more so than ever.  That person that would have cared for you is gone, now you're it...learn to be your own best friend, your own advocate, practice self-care.  You'll need it more than ever.
  • Recognize that your doctor isn't trained in grief, find a professional grief counselor that is.  We need help finding ourselves through this maze of grief, knowing where to start, etc.  They have not only the knowledge, but the resources.
  • In time, consider a grief support group.  If your friends have not been through it themselves, they may not understand what you're going through, it helps to find someone somewhere who DOES "get it". 
  • Be patient, give yourself time.  There's no hurry or timetable about cleaning out belongings, etc.  They can wait, you can take a year, ten years, or never deal with it.  It's okay, it's what YOU are comfortable with that matters.  
  • Know that what we are comfortable with may change from time to time.  That first couple of years I put his pictures up, took them down, up, down, depending on whether it made me feel better or worse.  Finally, they were up to stay.
  • Consider a pet.  Not everyone is a pet fan, but I've found that my dog helps immensely.  It's someone to love, someone to come home to, someone happy to see me, someone that gives me a purpose...I have to come home and feed him.  Besides, they're known to relieve stress.  Well maybe not in the puppy stage when they're chewing up everything, but there's older ones to adopt if you don't relish that stage.
  • Make yourself get out now and then.  You may not feel interest in anything, things that interested you before seem to feel flat now.  That's normal.  Push yourself out of your comfort zone just a wee bit now and then.  Eating out alone, going to a movie alone or church alone, all of these things are hard to do at first.  You may feel you flunked at it, cried throughout, that's okay, you did it, you tried, and eventually you get a little better at it.  If I waited until I had someone to do things with I'd be stuck at home a lot.
  • Keep coming here.  We've been through it and we're all going through this together.
  • Look for joy in every day.  It will be hard to find at first, but in practicing this, it will change your focus so you can embrace what IS rather than merely focusing on what ISN'T.  It teaches you to live in the present and appreciate fully.  You have lost your big joy in life, and all other small joys may seem insignificant in comparison, but rather than compare what used to be to what is, learn the ability to appreciate each and every small thing that comes your way...a rainbow, a phone call from a friend, unexpected money, a stranger smiling at you, whatever the small joy, embrace it.  It's an art that takes practice and is life changing if you continue it.
  • Eventually consider volunteering.  It helps us when we're outward focused, it's a win/win.

(((hugs)))  Praying for you today.

 

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Dear Kay,

i so know how you feel, so alone snd worried. I now take my little dog everywhere. She is a comfort. My therapist even wrote an emotional support dog RX for me recently so a copy of that is in my phone. Given the fire situation, you definitely should take Kodie with you. And your need for support. The doctor should understand Kodie is in fact your emotional support dog. Tell the office you are working on the paperwork if any questions. And eventually ask your therapist for a letter. They cannot deny your dog if a disability dog under the law, and emotional support animals do count. Kodie is not George but is the best you can do right now. My little dog has made it possible for me to travel and just survive the death of my husband. So I am now asserting my need to have her with me. You can do the same. 

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4 hours ago, KayC said:

it'll be two years at Christmas I've had this, doctors would not look in my throat "because of covid!"

That is obscene, if not criminal. They're #@!$ DOCTORS....and they shy away because of a virus? What's next, you call a plumber who refuses service "because I might get wet!" Our medical profession is such a joke. Best to you on that above all. 

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7 hours ago, KayC said:

No, I'm not at this point...if it gets to that point, it's already too late.  The evacuation zone is Waldo and Box Canyon, we're still a few miles away...but I also know how fast fire can travel if the circumstances are right.  This was at 14,000 acres and suddenly grew to 18,000!  It's the wind shift that is unnerving, it's towards us today/tomorrow.  My friend will come get Kodie, she has an appt at 11 but will at noon...he'll be here until then...she lives in the neighborhood.

Thanks for the correction, Kay...not that it sounds much better!  I'm glad you have a neighbor friend to watch Kodie for you.  It's still nerve wracking, no doubt.

It's just disgusting that it's taken 2 years for you to finally get in to see a specialist.  I get that COVID required some changes for a while, but this is just absurd.  My ENT's office was only accepting urgent patients through 2020, so the issue I have been having with my singing voice and a couple of hearing issues had to wait.  But they re-opened to regular patients with COVID measures in place in the spring of 2021 after the first round of vaccines and because we knew more about the virus and its mutations by then.

I have to wonder how many non-COVID patients suffered and even died because of delays and lack of resources.  I know there are many, but I wonder if any statistics will come out in the future.

Sending hugs and love.:wub:

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8 minutes ago, KayC said:

Nope, I'm healthier than I look! 

Very glad to hear that it doesn't look like cancer. It is a relief to have a doctor reassure you that you're in better health than you were thinking. My grief-addled mind can certainly get me worrying.

I'm wondering if a dentist might be able to figure out this mystery for you. 

 

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Kay, 

So glad the Doctor was able to relieve your anxiety about it being cancer.  Sorry there wasn't a diagnosis about what it is. 

Hoping the fires do not get too close to your house, so you don't have to evacuate.  I know from experience how much work that is and how much anxiety it can cause.  You don't need any more of either. 

Hugs to you and Kodie.

Gail

 

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10 hours ago, DWS said:

I'm wondering if a dentist might be able to figure out this mystery for you. 

No I went to an excellent dentist last visit, she knew what the bumps on the tongue were but not the throat..

9 hours ago, Lost7 said:

So glad for you. I bet it felt like a weight lifted off your shoulders.

Hugs Lost7 

Yes!!

9 hours ago, Gail 8588 said:

Hoping the fires do not get too close to your house, so you don't have to evacuate.

You and me both, it's not looking good as we're to get winds up to 50 mph Friday and Saturday will be in the 100s.  Praying!!!  They may shut off the electricity as a vacation, so if I go dark...

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On 9/6/2022 at 3:16 PM, foreverhis said:

I have to wonder how many non-COVID patients suffered and even died because of delays and lack of resources.  I know there are many, but I wonder if any statistics will come out in the future.

foreverhis,

Sadly, I believe that my loving wife died from delays in her treatment. She had received the first vaccine and when she complained about a fever and not feeling well, everyone told her that was normal. When she was finally admitted in the Hospital with an infection, they couldn't figure out where it was and were unable to treat it. Then she had a heart attack and everything went to Hell from there. I don't think her death will ever be connected to the lack of treatment due to Covid restrictions, but that is what I believe happened. Take care, John

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On 9/7/2022 at 8:45 AM, KayC said:

Nope, I'm healthier than I look!  

Kay C,

That was the issues that my loving wife went through, I can tell you what wasn't causing the infection/sepsis but they never figured out what was causing it. And if anyone has ever been in a situation with sepsis, you have to know the cause to treat the infection. I am glad that the issue doesn't seem to be cancer. I will say this as a non-Doctor and only as an observation, Stress is not good either and with dealing with all you have gone through. I am not saying stress caused the issue, but it may be keeping you body in an elevated state. Whatever it is I hope that you can find an answer and get some sort of relief. I also hope the fires don't get worse for you and anyone else in the area. Take care, John

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1 hour ago, John9 said:

foreverhis,

Sadly, I believe that my loving wife died from delays in her treatment. She had received the first vaccine and when she complained about a fever and not feeling well, everyone told her that was normal. When she was finally admitted in the Hospital with an infection, they couldn't figure out where it was and were unable to treat it. Then she had a heart attack and everything went to Hell from there. I don't think her death will ever be connected to the lack of treatment due to Covid restrictions, but that is what I believe happened. Take care, John

I don't think her death will ever be connected to the lack of treatment due to Covid restrictions, but that is what I believe happened. Take care, John

 

With you here, John.  There were some at the hospital up to the task, many were not including some of the doctors.  The debacle of COVID has many layers that may never be uncovered....and it hurts.  I feel your pain as mine is similar.  God Bless you.

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2 hours ago, John9 said:

I also hope the fires don't get worse for you and anyone else in the area

I just found out they're shuttting the power off tomorrow through Sat. night...just when our heat is in the 100s we can't run A/C!  Won't be able to come on line during that time either.

John, I understand...the lack of treatment is responsible for a lot of things, not only your wife's death but also whatever my condition is.

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Dear Kay,

Do hope you get a proper diagnosis. And my heart goes out to all of you--you must be on the West Coast--going through such a heat wave and additionally cutting off the power grid to conserve energy. So hard on you when already stressed. Keep you little Kodie beside you! Love, Laura 

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Thank you, Laura.  I have no idea when I'll be back on line as my laptop died...

Entire town Oakridge & Westfir under evacuation 1...pack and be ready to go.  I am at the top of the green area, closest to the fire.  I will likely lose the contents of my refrigerator during thiis.  No generator use allowed.

It could be a long while before I'm online as my laptop is dead.

https://www.kezi.com/news/oakridge-and-westfir-ordered-to-be-ready-to-evacuate-ahead-of-cedar-creek-fire/article_6ecab290-2fe2-11ed-a6c1-9f18f673a1c1.html?fbclid=IwAR2e7aAdPtL-yT4GiBLO_BGKP20ksDfRAEeANnMC-2CaJpRvQUb8Acp0FxE

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Kay C,

Hopefully you and Kodie will be okay. I will be thinking about you. Take care, John

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Thank you, kind of scared, no one has offered their home yet, my son's is quite a ways and I'm unfamiliiar with the area, so not ideal..my daughter's is not in a good area and has a 4th story apt. nowhere safe there, cars broken into, etc. and a code to get into the building, no computer, etc.  May go to a friiend's although I haven't talked to them about it yet. and I know their place is full...I need to find somewhere, when the entire town (miles from anywhere) is under evac and those are all your friends, it kind of makes it hard.

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Kay C,

I do understand the situation, and it is different if it is only a few people are affected. But as you say when it is "everyone" it makes a difficult situation almost unbearable. Is the Red Cross available to help the area or is it only after the fact that they offer help. I know that they are always asking for money from me, but never had any need for their services.

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Thinking of you, Kay. These evacuations must be so difficult. I'm glad you are with your daughter and you can stay in touch using her laptop. Stay safe with Kodie! wish there was something I could do for you but I am on the east coast in NY State.

Love,

Laura 

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4 hours ago, Laura Vence said:

Thinking of you, Kay. These evacuations must be so difficult. I'm glad you are with your daughter and you can stay in touch using her laptop. Stay safe with Kodie! wish there was something I could do for you but I am on the east coast in NY State.

Love,

Laura 

It's her friend's.  if i go to my son's I won't have one.

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Kay, best to you in all of this, hope you can find a safe haven! Even though you son is a ways out, from what you're saying, might be the best option, and remember it's temporary...thoughts and prayers to you!

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6 hours ago, KayC said:

Im at my daughter's on a borrowed laptop

Dear KayC, I've been thinking of you all along. So much strength and hope and positivity that you bring. But. I also get that this does come at a price or cost.

It is really hard work to keep staying optimistic; to keep looking for -- and finding -- the "bright side" or "sunlight" of life.

Really hard work that takes a lot of strength-of-will and determination. And it can be draining, exhausting and depleting. I do know, and I do get it.

Lots of Cosmic-Universal Strength -- and Love, Blessings, Protection, Support and Healing to you, KayC.  And then also my own love and hugs and good wishes.   Ronni

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@KayC I have just came across this thread and I'm so sorry that you are going through all of this. I don't understand the fires and I pray and wish the best to everyone who has been effected and lost everything to those who may be evacuated. I'm glad that to your knowledge it's not cancer.  I have been playing ring around the drs myself. Like I belive it was John who said they can tell you everything it isnt but have no clue as to what it is. My wbc hasn't been below 12k in over 8 years. If anyone doesn't know normal high white blood count is 11k. And mine has been as high as 32k. I have been to every Dr pretty much. This one passes me off to thar one and thar one says see this one. The only 2 specialist I haven't seen are rheumatology and neurology. But the my 3rd  Orth Dr has referred me to rheumatology and I have an appt with them in 3 mths. Can never just go see someone. It's always 3 mths out. But like you I have some good news I went to my cancer Dr. One of the drs who keeps saying autoimmune disease but I have been tested for EVERY autoimmune disease and they say I have none. And for the first time in over 8 years my blood work was actually normal. My wbc 10.1k.  Except the shape size and make up of my cells is normal. But since John's passed I haven't really been eating g much and when I do it's usually some kind of fruit or something kinda healthy.  And the BIG THING HERE... I QUIT SMOKING!!! It's been 2 mths since I quit smoking. But there in that comes another Dr. My pulmonary Dr diagnosed me with a lung disease and I had to quit or I was going to die. Suffocate  to death But then we go back to the autoimmune thing. Once again. I've been tested for EVERY autoimmune that there is a test for but I don't have one right?!?! The treatment for my lung disease is prednisone which other than just causing excessive weight gain has also caused me to have less circulation of my blood and the blood flow has been cut off to parts of my body/bones and i have avascular necrosis.  Dead bone. So there's the prednisone thing. But to treat this lung disease they use autoimmune drugs. Ok if I dint have an autoimmune disease why are you going to treat me with autoimmune drugs????

I'm going Monday to get my spinal stimulator.  I'm going to be so vulnerable. I'm not going to have John to take care of and protect me. I'm so alone. So I understand the totally alone. I had to ask a neighbor to go with. Yayy. They'll get me out of the hospital. Bring me home put me out and go home. I'll be on my own. I guess with all of this I'll find out how strong I am all alone (physically anyway)

I don't  believe that it's just covid neglect. I believe that the Dr's of today NEGLECT their patients which is neglecting the  oath they have taken to give the best care no matter the ability to pay or to bring no harm to anyone. Drs guess a lot. I mean they go to school and do a residency for 10 years. And in that time they are sleep deprived overloaded with information that there is NO WAY they can absorb but not only absorb but LEARN anything in complete. Even specialist. They do 4 more years of school and residency and in that time they may learn a lil more specific to that part of your body or disease but again they are overloaded with information they can not absorb let alone LEARN!!! I know I seem to be totally against drs and in a major way I am. I have been dealing with drs since I was born. They have slowly throughout the years figured out one thing at a time and that's going to 10 different Dr's ruling out 150 things to guesstimate what it is to treat me with meds that have made me sicker than the problem I'm either supposedly having because they're not sure and there just throwing things out there or something that I definitely have because there's test and x-rays MRIs CT scan Yada Yada ya. I'm fed up and like I've heard from yall there's been more neglect due to covid. We need a better Healthcare system.  

 

To everyone going through grief/loss in anyway and/or dealing with health issues I'm thinking of you. I'm praying for you. I'm always here for and with yall. Yall will notice I rant and I just go on and repeat. But I know all of you are here for and with me. I have found me a family of ppl who understand the depths of sorrow I'm going through. If at any time anyone in here wants to msg me.  I will be available.  I'm not always the chiperest (yes I also make up my own words...lol) but I will be here with and for you because you are here for me. 

 

Thank all of you!!! Love and big hugs

 

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26 minutes ago, KayC said:

The fire was five miles away from me a few hours ago. It's looking like I will be homeless.

Kay C,

I am sorry to here this, I will still hope for the best but sadly many things are out of our hands. I know my words won't stop the worrying or stress but you have done all you can in this situation. Stay as strong as you can and keep us posted. Take care, John

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Dear Kay,

This is beyond frightening for anyone fleeing a fire. You just hang in there, OK? Like John said, please keep us posted. Keep Kodie safe by your side. 
 

love 

laura 

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1 hour ago, KayC said:

I am so worried about Panther.  Funny, I didn't take my jewelry or coins, just practical stuff.

Kay C,

 I was thinking about him as well, hopefully he will be okay. Hoping for the best for you, you don't deserve this on top of everything else you have been through. Take care, John

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Kay,

Keeping you in my prayers too.  Don't give up hope. It is very hit and miss which homes burn and which homes are spared.  I hope you find yours is one that is spared. 

Gail

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It'll be weeks before I can return.  I knew I'd lose my refrigerator of food but they haven't  turned the electricity back on so I'm losing my full freezer as well.  I'm sick about it.  

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Kay, 

It looks from the news I can find that the fire did not spread on Sunday the way it had on Saturday.  Hopefully this is a positive trend. 

Hugs

Gail

 

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