Members Tesswretched Posted June 3, 2022 Members Report Share Posted June 3, 2022 My name is Tess. My sweetheart was diagnosed with FTD in 2017 at age 62. He lived at home until he became too ill. He is getting close. Not active but the end of end stage. Have been grieving for nearly 5 years. Trying to prepare which is odd in itself. Just reaching out. Need to get my grief off Facebook. Anyone relate? 1 Link to comment Share on other sites More sharing options...
Members reader Posted June 25, 2022 Members Report Share Posted June 25, 2022 Dear Tess, I'm sorry to hear about your sweetheart. I know it's very hard. I hope these websites will provide some additional support. https://www.theaftd.org/living-with-ftd/aftd-support-groups/ Grief Share Grief Healing Blog Grief in Common What's Your Grief 1 Link to comment Share on other sites More sharing options...
Members Summersun Posted July 24, 2022 Members Report Share Posted July 24, 2022 Hey there, is ftd fronto temporal dementia? I believe my father has that even though he won't get diagnosed. it's very hard, we scream at each other every day because he is so aggressive and I cannot take it anymore. So if it's that - yes I can relate. Probably have to move him very soon, too. Very scared as I have just buried my mother. How do you deal with the not caring? My father can still say that I'm very important to him, but he acts the opposite - causing complete chaos everyday and destroying everything that was left of my life. While not noticing that he does that and complaining all the time. I know the aggression comes from the fact that he can hardly organise himself, he refuses any help at the same time. I would have to get legal help, go against his wishes - obviously very very difficult when someone refuses to get diagnosed. Also a very lengthy process and could be too late once I start it. But what is hardest for me is that you basically have to grief them while they are still around, because they are absolutely not the same person. And that is very difficult for me because he's the perfect actor and can still pretend to be normal while where on the street. But gives me hell on earth the minute we are alone. So I have no one to turn to because no one believes that spectacle. Ftd is different in everyone. My father was already when he was healthy a perfect Jekyll and Hyde, always treating the family very different than strangers. Now that has gotten completely out of hand, and I don't even have my mother anymore to whom I could talk while she was alive.. do you have people around that you can talk to? Because the feeling of loneliness while your person is still alive is very hard to relate to others I think. all the best! Anna Link to comment Share on other sites More sharing options...
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