Members Nicky21 Posted November 3, 2021 Members Report Share Posted November 3, 2021 I lost my 5 month old son, 6 weeks ago. He had a complex heart condition. We didn’t know how bad until we went to the hospital at 8 weeks old for his surgery of a VSD. (A relatively common and fixable heart defect in babies) We experienced a long and painful hospital stay with highs & lows. Hopeful, he would be okay. He wasn’t. Through 2 open heart surgeries, we had to make the unbearable decision to take him off life support. I feel SO alone. I am alone. I know loss is so different depending on the age group, and what happened. So I really desperately want to speak to a parent who has lost an infant child after a battle of a disease. I want to find someone who may understand a bit of what we endured on our journey. I’m from Tasmania, Australia. I would love to even speak on the phone if you can. Thankyou Link to comment Share on other sites More sharing options...
Members Niloo Posted November 22, 2021 Members Report Share Posted November 22, 2021 Hello, this is Niloo. My husband and I just lost our 6 months old few days ago through a disease too. It only took the disease 3 days to take our angel son away. We live in Los Angeles and would love to connect and to talk. Link to comment Share on other sites More sharing options...
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