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Congenital Heart Disease


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Laying down with my 6 month old son for the first and final time destroyed my heart. It didn't feel real. It still doesn't feel real. I couldn't lay next to him anymore. My heart wanted my arms to hold him tight in my arms. My body wanted to shield him from everything but me. Whispering the words, "I love you," didn't seem enough for my precious baby. The resiliency in his soul will forever remain in my heart.

Forty-eight hours after my son was born he was urgently transported to a hospital out of state. Shortly after he was diagnosed with Congenital Heart Disease. How do you even begin to think once you receive news that your baby has CHD? Given the short amount of time with my son, it was extremely difficult for me to understand. I still feel like I don't understand. Several of my son's medical team explained to me over and over again. I couldn't retain the information.

The amount of education given to me about Congenital Heart Disease will forever leave me with questions. 

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