momofJustin

Loss of an Adult Child

60,572 posts in this topic

Georgina, keep us posted as to the medical treatments and scans. Are they looking into your kidney? Wow, those reports came from the police...who will go through those with you? Don't worry about next year now Georgina...maybe you will go to the weddings, and maybe you will not. Determine it at the time, no need to worry yourself now. Today is for today...

Kate, your Boy's birthday is on this year's Eri-Fest, so when we toast her I will also toast Jeff upon his birthday...Prayers for your hurting heart. For everyone's hurting heart.

Colleen, your strong heart will beat with sadness as you miss your Brian. His birthday has always been your hardest time since he left. I am holding your hand and heart.

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Colleen. I hope you are done work by now and able to sit down and relax, go to the cemetery or whatever feels rigjt for you.  Kira s birthday in January this year totally brought me to my knees too. I still don't know which day is harder, thier birthday or Angel date.  You've almost made it thru another July 12th. And all of us will always be here you you.

Georgina. So sorry you are sick. Soldier on thru , remember we are all holding your hands

 

I wish I could take away all of our pain and heartache. I read somewhere the strongest people in the world are grieving parents. I still wonder why our kids? When did God decide it would be our kids. The day they were born , maybe the day we were born?  I still have my faith but very hard to hold on when your child is gone.  Grieving parents are a forgotten and neglected group of people, except for here. So nice to see everyone came together today for colleen and her precious Brian. 

 

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HAPPY BIRTHDAY  IN   HEAVEN........BRIAN.

Colleen ------Thinking of you as Brian's birthday is here again.  Always 16....

Always  loved, Always Remembered.

 

Dee----Hope the spray for the insects will drive those devils away.   I, too,

have always listened to music after David's death.   He and I used to have

lots of in-depth discussions about music, because he loved it too.   Being a

teen in the 80's,  he liked the heavy metal bands  (which I did not),  but we

always got around to talking about  groups from other eras.  Prayers for

Carla's family.....so sad.  Wishing lots of sunshine for the ERI FEST.

 

Susan-----thank you for all the lovely screenshots with heartfelt words of comfort.

 

PEACE    TO   ALL

Davey&Lisasmom,   Sherry

 

 

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Georgina....you may want to ask your doctor about intraveneous vitamin C for additional tratment for sepsis....this is the article 

http://www.npr.org/sections/health-shots/2017/03/23/521096488/doctor-turns-up-possible-treatment-for-deadly-sepsis

It's hard not to get excited about news of a potentially effective treatment for sepsis, a condition that leads to multiple organ failure and kills more people in the hospital than any other disease.

But there have been so many false promises about this condition over the years, it's also wise to treat announcements — like one published online by the journal, Chest — with caution.

The study, from Eastern Virginia Medical School in Norfolk, Va., reported some remarkable success in treating patients who were at high risk of sudden death.

The story began in January, 2016, when Dr. Paul Marik was running the intensive care unit at Sentara Norfolk General Hospital. A 48-year-old woman came in with a severe case of sepsis — inflammation frequently triggered by an overwhelming infection.

"Her kidneys weren't working. Her lungs weren't working. She was going to die," Marik said. "In a situation like this, you start thinking out of the box."

Marik had recently read a study by researchers at Virginia Commonwealth University in Richmond. Dr. Berry Fowler and his colleagues had shown some moderate success in treating people who had sepsis with intravenous vitamin C.

 
 

Marik decided to give it a try. He added in a low dose of corticosteroids, which are sometimes used to treat sepsis, along with a bit of another vitamin, thiamine. His desperately ill patient got an infusion of this mixture.

"I was expecting the next morning when I came to work she would be dead," Marik said."But when I walked in the next morning, I got the shock of my life."

The patient was well on the road to recovery.

Marik tried this treatment with the next two sepsis patients he encountered, and was similarly surprised. So he started treating his sepsis patients regularly with the vitamin and steroid infusion.

After he'd treated 50 patients, he decided to write up his results. As he described it in Chest, only four of those 47 patients died in the hospital — and all the deaths were from their underlying diseases, not from sepsis. For comparison, he looked back at 47 patients the hospital had treated before he tried the vitamin C infusion and found that 19 had died in the hospital.

This is not the standard way to evaluate a potential new treatment. Ordinarily, the potential treatment would be tested head to head with a placebo or standard treatment, and neither the doctors nor the patients would know who in the study was getting the new therapy.

But the results were so stunning, Marik decided that from that point on he would treat all his sepsis patients with the vitamin C infusion. So far, he's treated about 150 patients, and only one has died of sepsis, he said.

That's a phenomenal claim, considering that of the million Americans a year who get sepsis, about 300,000 die.

"So that's the equivalent of three jumbo jets crashing every single day," Marik said.

An effective treatment for sepsis would be a really big deal.

"If it turns out in further studies that this is true, and we can validate it, then this will be an unbelievably huge deal," said Dr. Craig Coopersmith, a surgery professor at Emory University School of Medicine. "But right now we should treat it as a preliminary deal that needs to be validated."

Marik may face extra skepticism because the main ingredient is vitamin C, which has attracted a great deal of skepticism over the years. Fowler at VCU was concerned about that when he wanted to launch a study about the role of vitamin C in sepsis.

"Honestly, when we submitted the grant to the NIH, I was fully expecting them to say 'vitamin C? Really?' " Fowler tells Shots.

But he'd made the case that vitamin C wasn't simply a once-trendy antioxidant. When the vitamin is injected, as opposed to taken orally, it can influence the immune system's response to inflammation, he told Shots.

The NIH gave him a $3.2 million grant to run a carefully controlled study of vitamin C to treat sepsis, with all the usual conditions: It includes placebos; the scientists don't know who's getting the active drug; and it's being conducted at several universities.

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thank you, Laurie....John David developed sepsis....he was very, very sick...and then he had the massive heart attack. I know in my Mother's heart that he was beyond healing of the human hand....he was also the beloved child of Divine Spirit.....'and the Lord came with strong arms and took him in the night'....my beautiful beloved boy went to his first home. He is so loved.

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Hi Laurie yes the doctors have prescribed vitamins but when I've finished the antibiotics I'm on as they are so strong they are making me sick most days. I will have to be on low dose antibiotics for the next six months after they have sorted out the kidney. Had a rough day today missing James with every breath I take .

Susan so sad your story xx Thank you for the posts they really help x

Have a gentle day God Bless xx

 

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Georgina, take it as easy as you can.

Laurie, what amazing research you have done and what great news that this Doctor has found such success with sepsis. How great that you posted this.

Susan, I don't think I knew that John David had sepsis...such hard memories my dear. I know that you and Laurie will be marking dates next to one another for anniversary and birthday of your Boys.

Sherry, the bugs or chipmunks seem to be stronger than any spray I can come up with though I do think it deterred them for a bit. We had a bunch of rain, though nothing like th enorthern suburbs who are flooding terribly.

I hope that Laurie and Colleen are not flooding as Wisconsin got hit heavily too.

Anyone hear from Dianne? Shannon? Sandy? MaryAnne?

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Dee, thinking of you tomorrow as you remember that special girl of yours. We will be with you in thought and we are sending a huge HUG.

Kate

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Kate.  I'm so sorry you have some one like this in your family. As usual the non-bereaved people don't have a clue what we live with every day. How dare they judge how you should or shouldn't be.  Thier ignorance is unbelievable at times.  Especially when you have Ross being unwell at times.  You are working  hard to keep your self a float  the very best you can while still offering helping  to others. A mother said  to me once " oh I never let my kids shower with door locked" as if it was my faulte for that door being locked.  That door had nothing to do whether Kira died or not. She just wanted me to fell bad.  Don't let one extremely rude insensitive person let you get depressed or suicidal. You have come a long way. And I won't go to that family event either.  I would like to see them walk in your shoes even for a day.  Don't let them take away all the progress you've made. I hope you can stayvaway from this person as much as possible.  Come to us all your kind and understanding friends. We would never hurt you like that .  Please don't let this person bring you down.  If you feel like a call let me know.  I am always here. I'm so sorry some one could talk like that. Head held high and strong. Hugs

 

 

 

 

 

 

 

 

 

 

 

 

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Thanks Kate for your well wishes for tomorrow. Now my well wishes for you, having gone through a rough time today. I know that you need to stand up for what is right, it is who you are. So, well done!

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Dee hugs esp for today always a very tough time. We are here with you holding your hand. let us know how you are and how you spent the day. Hope you are ok.

georgina sorry that you have had such a rough time. Take care of yourself and keep strong. Grief not only wrecks your mind and spirit it causes havoc with your body. I think the additional stresses put upon grieving parents causes inflammatory responses that cause organ issues. Also the major surges of adrenaline and cortisol can cause health problems. Also I think we are more vulnerable to infections etc because our immune systems defences are lowered because of ongoing stress and depression.

mermaidtears sepsis is such a tragic disease, often going undetected until it causes major health issues. In the UK we are having a major campaign going on to help the public and health professionals recognise the early signs which are very subtle which is always a good thing. knowledge is power. What exactly happened with John david if that is not too sensitive a question? I don't think I know your story.

Hope all you other Indigos are doing ok, check in when you feel upto it and let us know how you are doing.

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Dee. Thinking of you today on this sad occasion of Ericas Angel date.  Erica, paint the skies with your shades of pink showing your mama you are there with her, send her signs of your presence and let her feel up wrap your arms around her like you used to.  Stay strong my friend.  Feel all of use here with you as you navigate your way thru.  Hugs

 

 

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I just found out that a friend of mine lost his 23 year old son. There has been so much losing around here. A week ago a van with 9 people got into an accident. I barely remember reading the article. I think I read 7 died. One was an older lady and the rest children. The driver is only 19. So sad. My heart breaks for them. If that's even possible since it's in shreds anyway. I started shaking when I heard about my friends son. I haven't stopped.

Happy birthday Brian. I don't have words of comfort. I'm sorry. I am having a hard time dealing/grieving. But I did want to say/acknowledge that I am thinking about his birthday. 

Love to all

I wrote the above on Wednesday. Thought my words were falling on deaf ears and honestly was beginning to feel more alone than I already do. I guess I didn't press the submit button good enough for it to post. I'm sorry. 

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My heart and thoughts are with you today Dee .. your family and with Erica...    but you are all with me everyday.   You are a beautiful strong woman and your angel is so very proud of you.

I don't post anymore...  but I read always and walk with each of you through this journey.  All the angel days and birthdays .. the sadness and the happiness..  

I am going on my way to 11 years without JaBoa..  and this site has been such a help..   just to read the struggles and hopes of all hear makes me feel so not alone..   

My health has declined over the years.. ups and downs..  but I still keep going..    to many people still depend on me..  sometimes I think that is what keeps me going yet keeps me down..  can't do without it though.

My thoughts and prayers go with all the angels, parents and families.  It is a difficult road to travel but we are all so much stronger than we want to be or ever thought that we could be.

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Dee...you have become such a touchstone to me and many....this is my 5th year on the grief journey..and now I understand that for me to have healthy healing..I must give unconditional empathy. That is what you have been giving all these years. We are all better for each word of care and compassion you have bestowed on many. I know this day will have clouds of dark and thunder....the day your Eri left this earth home...but we shall also be grateful that that beautiful..radiant...girl child left many joyful memories in your heart.

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Dee,

Thinking of you today and sending many warm thoughts your way for you and your family. I've been so grateful for your stories and words over the 11.8 months and I find strength in your courage and hopeful attitude. Much love and light to you all.

 

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ERI.....SWEET  ERI----------Bless your little soul in heaven.   Smile down

on your mama and family who  love you and miss you.

 

 Dee----Thinking of your today, and holding your hand.

 

Tinay------Prayers for your friend who lost her dear son recently.

 

Leah-----Good to see your post.  I know that it has been a long 11 years

for you without your beloved granddaughter, JaBoa, and many other

health & family problems.  Sending wishes for peace to you.

 

Susan----Thanks for the screenshots....I especially like the one for  "a walk

in Nature".   I find that nature is so calming and soothing to the bereaved soul,

and nature is a true friend....always there for us. 

 

Georgina-----I've been watching reruns of "Grantchester" on PBS, and each time

I watch, and see the actor that you said looks like your dear son,  I think of

you and your James. Such a handsome guy,...your son. Wishing you good outcomes

for all the tests, and I hope you feel better.  Antibiotics can be hard to tolerate. Thoughts & prayers, friend

 

PEACE  TO   ALL.

 

Davey&Lisasmom,   Sherry

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Thank you to EVERYONE today, for your kind thoughts and words about my Girl, Erica. I just got back from the cemetery...I am going to take a nap now, hopefully anyhow, as last night was a fitful sleep. Thank you Friends,

Leah, good good good to know you are out there fighting the good fight. Finding ways to stay mobile and helpful. The family does overly depend on you, but you have given them a guide as to how to live...no gift bigger or better than that. Eleven years Leah, hard to believe. Holding you right back.

Divianz, love the photo...

Tinay, prayers for your friend who now has to travel this damn road.'

Sherry, my 14 year-friend...we walk along together don't we...just one month separating our sad dates...thanks for your words.

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I am not sure if I have come to the right place? I don't have support groups in the area and I am having a pretty tough time. Our son Skylar Sheehan passed away last year on his 20th birthday of sudden cardiac death. Skylar was a basketball player that was on scholarship at the university of Calgary and he was the light of my life my soul mate ...my everything. This second year has been so hard much harder than the first. I lost my brother in a car accident when he was 20 ..my biggest fear was that I would lose my son ... 7:30am on his birthday he was awake sleeping 8am he was gone. I tried cpr till the paramedics came and we tried for 2 hours. skylar left us on his 20th birthday ...my biggest fear came true. Autopsy showed necrosis on his right ventricle but we all have to go for genetic testing as he did have abnormal ecg's that were ignored (didn't know until I read his records) Thank you for being a place to talk about Skylar ....

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Somersky, your BEAUTIFUL Boy is sitting there looking so handsome, wearing his Marley shirt...my Daughter's friends sang three bird at her funeral, she was 19 when she died 14 years ago today. She also was an April birthday like your Son. We have had several parents here whose Child died from the sudden heart issues like your Boy. Often times, the first knowledge of something being wrong was the event itself. Do you live in Calgary? We have other parents here who do. The second year is often very hard for families as the shock is well worn away  by then and the small movies of their return that we play in our hearts, can no longer be viable..the second year holds the reality of the sad facts. When you say that these warnings were ignored...by who? The school? Please when you are up to it, tell us more about your sweet Son, tell us more about you and never be afraid of repeating your stories or retelling them. It is very good for ones soul to tell  the stories of their loved ones. WE are here. Always know that there is not one way to grieve but a myriad of ways, not one way is wrong, take your time as you go through this time.

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Dee, thinking of you today on Erica's Angel day. Sending gentle wishes and hugs.

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Tina, I am sorry for the loss of your friend's son. Once you lose your own child, it seems like these are harder blows to take. Much closer to the heart. Yours is a recent loss so there is still a lot of shock...may you find gentleness in your day.

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Devianz, what a great picture of your beautiful boy! 

Somersky, I am sorry for the loss of your dear son, Skyler. Yes you are in the right place. Many have come here...some have stayed on to be a beacon to others --- it is a good place. 

Susan, I did not realize that John David had sepsis...actually my mom told me about this research...and then Georgina posted...yes, we are coming to our marker days.

Kate, sending gentle thoughts your way....

It is late tonight but wanted to get this posted...

Also, thinking of Gretchen and those we haven't heard from in awhile...Mary Ann, Becky....

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