Members jpmj2008 Posted January 17, 2008 Members Report Share Posted January 17, 2008 I am currently taking care of my 41-year-old sister with third-time brain cancer. She lives with us (me, husband, two smallish kids). She was given six months, three months ago. As I read others notes about the love they feel and how grateful they are to be doing this, I just can't find that feeling in myself. Everyone tells me that I'm not alone in what I feel, but I haven't found anyone yet who even hints at knowing let alone understanding. And then on top of those feelings, I get to feel guilty for feeling that way. I just really would like to find someone who truly understands this because the weight is enormous, but I have to keep doing the right thing. Link to comment Share on other sites More sharing options...
Members cheryl36 Posted August 20, 2008 Members Report Share Posted August 20, 2008 jpmj: I am responding to your comment below. My name is Cheryl and I have lost my husband to GBM or gloiblastomia Multiforme at the young age of 38. He was dx on April 15th of 2004 and they gave him 3 months. He lived for 7 1/2 months! He passed on November 28th 2004. My point is, is I was is one and only caregiver. 24/7 plus I had to run our business and raise 3 kids all by myself. Yes I do understand exactly what you are going through. I was grieving at the sametime, I was exhausted day in and day out. I had no time for myself ever. I couldn't get away ever. It's been almost 4 years and looing back now, I am so blessed that I was the one who took care of him. I am sorry for you, and your family. Believe me when I say, the feelings you are experiencing are completely normal. You will go through many, many emotions. Do not feeling guilty about it, it's all a part of this process. The process of grieving. I had resented Scott (my husband) a few of those months, because I couldn't and didn't vent my frustrations as things were happening. Hang in there! Just do the best that you can, and believe me when I tell you, Spend as much time as you can with her trust me on this, one day you will look back at this and be very glad you did it for her and because you love her. Take care and may God bless you and your family. Cheryl Link to comment Share on other sites More sharing options...
Members karolynca Posted September 4, 2008 Members Report Share Posted September 4, 2008 I totally agree with Cheryl, those feelings are normal, I myself found many times exhausted, thinking it was not fair, or why me??? resenting that all the responsability was in my shoulders, however looking back I wouldn't want it in any other way. Hang in there Link to comment Share on other sites More sharing options...
Administrators Kelly Posted August 8, 2010 Administrators Report Share Posted August 8, 2010 Dear Members,We are excited to mention that we are moving to a more new and improved message boards on MONDAY MORNING AUGUST 9th! The boards will be done for a few hours while we are making the conversation. Remember we posted information about this move a month ago. For some of you this might seem a bit sudden, but when we were reviewing the site we determined the current message board you are using is out of date and the company that designed it is no longer in existence. The good news is this new message board will have new features that have been requested in the past like more fields we can add to your profiles and a chat room up to 20 people at one time. If we find the chat room is bursting at the seams we will add additional room for extra people. All your old posts, private messages and such will be migrated to the new message board. You might have to put up your profile picture again but not sure. The new company will be doing the migration for us. Here is a short list of some of the new features on the board:- Custom Profile Fields- Users can customize their profile pages by selecting a background color or background image, with tiling options.- Facebook and Twitter Integration- users can respond to multiple posts at once with "mini-quote"- Pinned discussion threads - like welcome to our board etc.- Announcements made across some boards or the entire message board- Search: Users can easily find all content generated by a particular member, by clicking the 'Find Content' button that appears on the main profile page, or in the Mini Profile Popup which can be accessed throughout the board. The results page allows content to be filtered by application, as well whether the member created it or merely participated in it. - Privacy: allows users to sign in anonymously, hiding them from the online users list. Users also have the option to disable personal conversations and user-to-user emails, as well as ignore other users if necessary.The next exciting piece of news about the new message board is it will have a new domain name of www.grieving.com for search engine optimization purposes. It will still be apart of Beyond Indigo and can be found through www.beyondindigo.com. We will be redirecting your current URL's to this new domain name but we might miss a few. If that is the case simply go back to www.grieving.com or www.beyondindigo.com to find your message board thread. We will try to make the transition as seamless as possible. The bottom line is the new board will give us room to grow our community and more options to interact better with each other. If you have any questions please direct them to feedback@beyondindigo.com. Kelly Baltzell, MACEO/PresidentBeyond Indigo Family Link to comment Share on other sites More sharing options...
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