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    • ModKonnie

      Advertisements   09/05/2017

      Hi all,  I'm sure you've noticed some changes in the forums. We've again had to do some updates, so that's why things may look a little different. Nothing major should have changed.  Also, we are going to start adding advertisements sensitive to our community on the boards. This is something we are experimenting with, and we will certainly make sure they are in the best interests of everyone. We want to make sure our forums continue to stay accessible and cost free to all of our members, and this is a way to ensure this.  If you have any questions or comments, please feel free to privately message me or email me at Konnie@beyondindigo.com.  As always, we will be here with you, ModKonnie

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  1. The healthcare system has failed my mom. In 2013 she was found to have a lymphnode in her neck that had metastasized from an unknown site. Her pathology was sent all over the US where they eventually labeled her as having lymphoma. This was a misdiagnosis. They treated her with surgery, chemo, and radaiation. A year and a half later she was diagnosed with breast cancer. She underwent a lumpectomy and radiation. She has trouble swallowing and went to several doctors who told her it was from the first radiation causing scar tissue. She also noticed one of her nostrils was closing up and she had difficulty breathing through it, again this was dismissed. She went to ER due to a severe headache and vomiting where she was found to have a brain tumor. She underwent a craniotomy where the pathology was the same as the first cancer, a metastasis of an unknown origin. Further work up revealed esophageal cancer, no wonder she couldn't swallow. It had spread to her colon, lungs, liver, spleen, bones, and nose (the reason she was having difficulty breathing)She has undergone radiation to the nose, esophagus, and brain and currently going through chemo where her cancer is continuing to grow. During this time the insurance continually denied her treatments and follow up appointments, doctors were waiting far too long between scans and visits, and no one has told her how bad her prognosis is/life expectancy. She was in good health and lived a healthy life style, only 64, Active, vegan, exercised, applied sun screen daily, didn't smoke, didn't drink. I estimate she only has a couple months left and I'm having a hard time coping. How will I get through this? She will never see me get married or have children. I don't have religion to fall back on. Seeing my dad so upset over this is also termultuous. He has seen her everyday for the last 48 years. He is clearly not in good health either and I think he will pass shortly after she does. I will have no parents. I feel useless. I feel like the healthcare system failed us. How do people get through this? I'm so upset my heart literally hurts. How did this happen.
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